
Since February 2022, the entire social sphere has “frozen” in Russia, including many initiatives in terms of protecting the rights of people with disabilities and their relatives, said in an interview with Kommersant the head of the Palliative Care Center, the founder of the Vera charitable foundation for helping hospices and Advisor to the Governor of the Nizhny Novgorod Region Nyuta Federmesser.
To achieve systemic change in the social sphere, it must be “in a more stable state than today,” Federmesser points out. “And when it is first knocked out by COVID-19 for two years , and then by the SVO, then the solution of any planned tasks goes by the wayside,” she notes.
According to Federmesser, now talks about the rehabilitation of disabled people have resumed in the country, this is happening against the backdrop of an understanding that a stream of people with various injuries will “give in” from the war zone, who will need to be treated and rehabilitated. “Some have amputated limbs, and someone is in a vegetative state after severe head wounds, and some of them will be declared incompetent,” said the head of the Palliative Care Center.
Federmesser warned about the risk of the ONF to fall under the law on foreign agents Society
She warned that if Russia does not pass laws on distributed guardianship, paid guardianship, and kindred and unrelated care, “then all these people will soon join the ranks of residents of neuropsychiatric boarding schools.”
For many years, public organizations have been seeking the adoption of a law on distributed custody of incapacitated or not fully capable people (the State Duma approved the draft in the first reading in 2016). According to the current legislation, if a person ends up in a psycho-neurological boarding school, the exclusive functions of a guardian are transferred to the head of the institution, which leads to a violation of the rights of the ward; if the bill is passed, NPOs and individuals (for example, relatives) can also be guardians, public figures indicate.
Charitable foundations drew the attention of President Vladimir Putin to the need to speed up the adoption of the law; in 2019, he instructed the government to prepare a report on this topic, and in 2020 to finalize the bill with the participation of NGOs.
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